RESOURCES

Federal Agencies

PALs United for Veterans' Health

PALs United for Movement Disorders

Genera Resources

PALs United fo Lung Healt

PALs United for Lung Health

Legislative Branch

U.S. House of Representatives

Committee on Appropriations http://appropriations.house.gov/
Committee on the Budget http://budget.house.gov/
Committee on Education and Labor http://edlabor.house.gov/
Committee on Energy and Commerce http://energycommerce.house.gov/
Committee on Ways and Means http://waysandmeans.house.gov/

U.S. Senate

Committee on Appropriations http://appropriations.senate.gov/
Committee on the Budget http://budget.senate.gov/
Committee on Finance http://finance.senate.gov/
Committee on Health, Education, Labor, and Pensions (HELP) http://help.senate.gov/
Special Committee on Aging http://aging.senate.gov/

Congressional Support Agencies

Congressional Budget Office (CBO) http://www.cbo.gov/
Government Accountability Office (GAO) http://www.gao.gov/
Library of Congress http://www.loc.gov/index.html
- Congressional Research Service (CRS) http://www.loc.gov/crsinfo/aboutcrs.html
- Thomas: Legislative Information on the Internet http://thomas.loc.gov/
Medicare Payment Advisory Commission (MedPAC) http://www.medpac.gov/

Contact your Congressman: https://www.house.gov/representatives/find-your-representative

Find your state representative: https://openstates.org/find_your_legislator/

Legislative

Information Resources

Census 2010 - Color-Coded Race Map http://demographics.coopercenter.org/DotMap/index.html
Center for Science in the Public Interest http://www.cspinet.org/
Clinicaltrials.gov http://clinicaltrials.gov/
Cochrane Collaboration http://www.cochrane.org/
Community Guide http://www.thecommunityguide.org/index.html
Consumers Union http://www.consumersunion.org/
Federal Register http://www.gpoaccess.gov/fr/
The Joint Commission (formerly JCAHO) http://www.jointcommission.org/
Medical Expenditure Panel Survey (MEPS) http://www.meps.ahrq.gov/mepsweb/
National Committee for Quality Assurance (NCQA) http://www.ncqa.org/
National Guidelines Clearinghouse (NGC) http://www.guideline.gov/
National Health and Nutrition Examination Survey (NHANES) http://www.cdc.gov/nchs/nhanes.htm
National Institutes of Health (NIH) Clinical Trial Finder: https://www.nih.gov/health-information/nih-clinical-research-trials-you/finding-clinical-trial
National Quality Forum (NQF) http://www.qualityforum.org/
National Quality Measures Clearinghouse (NQMC) http://www.qualitymeasures.ahrq.gov/
National Working Group on Evidence-Based Health Care http://evidencebasedhealthcare.org/
Public Library of Science (PLoS) http://www.plos.org/
Pub Med (Medline) http://www.ncbi.nlm.nih.gov/sites/entrez
Thomas: Legislative Information on the Internet http://thomas.loc.gov/
US Pharmacopeia (USP) http://www.usp.org/

Infomation Resources

Think Tanks and Research Organizations

AcademyHealth http://academyhealth.org

Alliance for Health Reform http://www.allhealth.org/
American Enterprise Institute http://www.aei.org/home
Brookings Institution http://www.brookings.edu/
California Healthcare Foundation http://www.chcf.org/
Cato Institute http://www.cato.org/
Center for Health Care Strategies, Inc. http://www.chcs.org/
Center for Biosecurity (at University of Pittsburgh Medical Center) http://www.upmc-biosecurity.org/
Center for Studying Health System Change http://www.hschange.com/
Center on Budget and Policy Priorities http://www.cbpp.org/
ECRI Institute's Comparative Effectiveness Resource Center https://www.ecri.org/comparativeeffectiveness/Pages/default.aspx
Economic Success Clearinghouse (formerly Welfare Information Network) http://www.financeproject.org/index.cfm?page=24
Employee Benefit Research Institute http://www.ebri.org/
Georgetown University
- Center for Children and Families http://ccf.georgetown.edu/
- Health Policy Institute http://hpi.georgetown.edu/
George Washington University
- Center for Health Policy Research http://www.gwumc.edu/sphhs/institutescenters/center_for_health_Policy_research.cfm
Heritage Foundation http://www.heritage.org/
Health Affairs http://www.healthaffairs.org/
Institute for Health Policy Solutions http://www.ihps.org/index.shtml
Institute of Medicine http://www.iom.edu/
Joint Center for Political and Economic Studies — Health Policy Institute http://www.jointcenter.org/index.php/current_research_and_policy_activities/health_policy_institute
Kaiser Family Foundation http://www.kff.org/
Mathematica Policy Research, Inc. http://www.mathematica-mpr.com/
National Academies of Science http://www.nationalacademies.org/
National Association of Insurance Commissioners http://www.naic.org/
National Academy of Social Insurance http://www.nasi.org/
RAND Health http://www.rand.org/research_areas/health/
State Coverage Initiatives http://www.statecoverage.org/
The AIDS Institute http://www.theaidsinstitute.org
Urban Institute http://www.urban.org/

Think Tanks

National Advocacy Resources

American Association of People with Disabilities (AAPD): http://www.aapd.com/
American Association of Retired People (AARP) http://www.aarp.org/
CarePages: https://www.carepages.com/
Center for Medical Consumers: http://www.medicalconsumers.org/
Center for Patient Partnerships: http://www.patientpartnerships.org/
Families USA: http://www.familiesusa.org/
Healthcare Advocates, Inc: http://healthcareadvocates.com/
Kaiser Family Foundation: http://www.kff.org/
MD Choice - Health Central: http://www.mdchoice.com/
MDjunction: http://www.mdjunction.com/
My Pyramid: http://www.mypyramid.gov/
Medicare Rights Center http://www.medicarerights.org/
National Patient Advocate: http://www.npaf.org/index.php
NORD’s Medical Assistance Program: http://rarediseases.org/programs/medication
Patient Advocacy Resources: http://library.uchc.edu/departm/hnet/advocacy.html
Patient Advocate Foundation: http://patientadvocate.org/
Pinnacle Care: http://www.pinnaclecare.com/
The AIDS Institute http://www.theaidsinstitute.org
Uninsured People with High Risk Health Problems: http://www.healthcare-ethics.org/general/highrisk.asp

National Advocacy

State-Centered Research Organizations

American Public Human Services Association: http://www.aphsa.org/Home/home_news.asp
National Association of State Medicaid Directors (NASMD): http://www.nasmd.org/Home/home_news.asp
Association of State and Territorial Health Officials: http://www.astho.org/
Council of State and Territorial Epidemiologists: http://www.cste.org/dnn/
Council on state Governments: http://www.csg.org/
Florida Consortium for HIV/AIDS Research: http://www.FCHAR.org
Governing the States and Localities: http://www.governing.com/
National Academy for State Health Policy: http://www.nashp.org/
National Alliance of State and Territorial AIDS Directors (NASTAD): http://www.nastad.org/
National Association of State Budget Officers (NASBO): http://www.nasbo.org/
National Association of County Health Officials: http://www.naccho.org/
National Conference of State Legislatures: http://www.ncsl.org/
National Governors Association: http://www.nga.org/portal/site/nga/menuitem.b14a675ba7f89cf9e8ebb856a11010a0
National Network of Public Health Institutes: http://www.nnphi.org/home/
Nelson A. Rockefeller Institute of Government: http://www.rockinst.org/
State Health Access Data Assistance Center (SHADAC): http://www.shadac.org/
State Health Access Reform Evaluation: http://www.shadac.org/share/

State Advocacy

Global Health Research Organizations

American Association of People with Disabilities (AAPD): http://www.aapd.com/
American Association of Retired People (AARP) http://www.aarp.org/
CarePages: https://www.carepages.com/
Center for Medical Consumers: http://www.medicalconsumers.org/
Center for Patient Partnerships: http://www.patientpartnerships.org/
Families USA: http://www.familiesusa.org/
Healthcare Advocates, Inc: http://healthcareadvocates.com/
Kaiser Family Foundation: http://www.kff.org/
MD Choice - Health Central: http://www.mdchoice.com/
MDjunction: http://www.mdjunction.com/
My Pyramid: http://www.mypyramid.gov/
Medicare Rights Center http://www.medicarerights.org/
National Patient Advocate: http://www.npaf.org/index.php
NORD’s Medical Assistance Program: http://rarediseases.org/programs/medication
Patient Advocacy Resources: http://library.uchc.edu/departm/hnet/advocacy.html
Patient Advocate Foundation: http://patientadvocate.org/
Pinnacle Care: http://www.pinnaclecare.com/
The AIDS Institute http://www.theaidsinstitute.org
Uninsured People with High Risk Health Problems: http://www.healthcare-ethics.org/general/highrisk.asp

Global Health Research Organizations

State Health Policy Forums

AR: Arkansas Center for Health Improvement http://www.achi.net/index.asp
CA: California Health Policy Forum http://www.cahpf.org/
CO: Colorado Health Institute http://www.coloradohealthinstitute.org/
FL: Florida Chain http://floridachain.org/
FL: The AIDS Institute http://www.theaidsinstitute.org
GA: Georgia Health Policy Center (Georgia State University) http://aysps.gsu.edu/ghpc/
KA: Kansas Health Institute http://www.khi.org/
LA: Louisiana Public Health Institute http://lphi.org/home2/
MA: Massachusetts Health Policy Forum http://masshealthpolicyforum.brandeis.edu/
ME: Edmund S. Muskie School of Public Service (University of Southern Maine) http://muskie.usm.maine.edu/
MI: Michigan Health Policy Forum http://www.nursing.msu.edu/HPF/
ND: Center for Rural Health (University of North Dakota) http://ruralhealth.und.edu/
TX: Texas Institute for Health Policy Research http://www.healthpolicyinstitute.org/
WA: Resource Center for Health Policy (University of Washington) http://depts.washington.edu/rchpol/
WI: Population Health Institute (University of Wisconsin) http://uwphi.pophealth.wisc.edu/

State Health Policy Forums

Charitable Giving Health Foundations

Bill and Melinda Gates Foundation http://www.gatesfoundation.org/
Clinton Foundation http://www.clintonfoundation.org/
Commonwealth Fund http://www.commonwealthfund.org/
Elton John AIDS Foundation http://ejaf.org/
Robert Wood Johnson Foundation http://www.rwjf.org/
The Atlantic Philanthropies http://www.atlanticphilanthropies.org/
The David and Lucile Packard Foundation http://www.packard.org/
The John A. Hartford Foundation, Inc. http://www.jhartfound.org/
The Kresge Foundation http://www.kresge.org/
The SCAN Foundation http://www.thescanfoundation.org/
W. K. Kellogg Foundation http://www.wkkf.org/

Charitable Giving Health Foundations

Medication Therapy Management

Medication Therapy Management and Comprehensive Medication Management

PCPCC Resource Guide- Integrating Comprehensive Medication Management to Optimize Patient Outcomes 2012 http://www.pcpcc.org/guide/patient-health-through-medication-management
Joint Commission of Pharmacy Practitioners 2014 http://www.pharmacist.com/sites/defaultfilesJCPP_Pharmacists_Patient_Care_Process.pdf
Medication Underuse: The Most Underappreciated Quality of Care Gap” McInnis T. Definitions in Pharmacy. 2015 Mar 11 http://www.pharmacytimes.com/publications/directions-in-pharmacy/2015/march2015/Medication-Underuse-The-Most-Underappreciated-Quality-of-Care-Gap
Partnering with Pharmacist in the Prevention and Control of Chronic Disease- CDC Guide http://www.cdc.gov/dhdsp/programs/spha/docs/pharmacist_guide.pdf
National Governor’s Association- F.Isasi and E. Krofah. The Expanding Role of Pharmacists in a Transformed Health Care System (Washington, D.C.: National Governors Association- Center for Best Practices, January 13, 2015) http://www.nga.org/files/live/sites/NGA/files/pdf/2015/1501TheExpandingRoleOfPharmacists.pdf
Improving Health Care Quality and Affordability in Delaware http://governor.delaware.gov/docs/A_InnovationFactSheet.pdf
Chronic Disease Care Coordination in Connecticut https://www.cga.ct.gov/2014/PHdata/Tmy/2014HB-05386-R000305-Suan,%20Nesci,%20Arthristis%20Foundation-TMY.PDF
Chronic Disease Care Coordination in Massachusetts http://192.168.1.1:8181/http://ccmcertification.org/sites/default/files/downloads/2014/FINALCombinedCare%20Coordinators%20Case%20Management%20and%20CMM%20v4%20(1).pdf