PALs United for Lung Health
October 6, 2018 - PALs United for Lung Health Roundtable @ CHEST Annual Meeting - San Antonio, TX
Held in concurrence with the American College of Chest Physicians (CHEST) Annual Meeting. In total, 24 lung health advocacy leaders and other stakeholders from organizations throughout the U.S. participated in the event, The meeting was developed by PALS in collaboration with the PALs United for Lung Health Steering Committee.
The convening was intended to carry forward the engagement that began at the inaugural PALs United for Lung Health event held in Washington, DC in October 2017, and that continued at the Advocacy Roundtable held at CHEST in Toronto in October 2017 and was further advanced at the American Thoracic Society International Conference in San Diego in May 2018. Roughly half of the Advocacy Roundtable registrants attended one or more of these previous meetings.
Key objectives of the Advocacy Roundtable were to:
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Build upon the engagement started at the inaugural PALs United for Lung Health event held October 23, 2017 in DC, to further coalesce and collaborate around common goals to raise the profile of lung disease and advance patient-centered solutions relating to access to care, services and innovations in lung health.
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Address biomarkers across lung health, in particular, how biomarkers are and will be used to determine what treatments will work best for people with lung cancer, COPD, asthma and other lung diseases. Examine examples and identify how the lung health community can collaborate to help ensure the promise of delivering treatment based on biomarker testing can be fully realized.
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Further assess and prioritize action steps and implementation strategies identified at the PALs United for Lung Health Roundtable May 20, 2018 at ATS, to enable lung health leaders to work collectively in raising the profile of lung disease and advancing patient-centered solutions.
Featured speaker for this Advocacy Roundtable was national lung health thought leader, Barry Make, MD, who is Co-Director of the COPD Program and Director, Pulmonary Rehabilitation, and Respiratory Care, and Chair of the Faculty Appointment, Promotion and Periodic Evaluation Committee at National Jewish Health. He is Professor of Medicine in the Division of Pulmonary Sciences and Critical Care Medicine at National Jewish Health and the University of Colorado School of Medicine. Dr. Make addressed biomarkers across lung health, in particular, how biomarkers are and will be used to determine what treatments will work best for people with lung cancer, COPD, asthma and other lung diseases. Tonya Winders/Allergy & Asthma Network & Jamie Sullivan/COPD Foundation led an interactive, action-oriented session on identifying opportunities to collaborate for change.
May 20, 2018 - PALs United for Lung Health Roundtable @ International Conference of the American Thoracic Society (ATS) - San Diego, CA
Held in concurrence with the International Conference of the American Thoracic Society (ATS) in San Diego, CA. In total, 30 lung health advocacy leaders from organizations throughout the U.S. and Canada participated in the event. Planned by PALS and PALs United for Lung Health Steering Committee. The Roundtable was intended to carry forward the engagement that began at the ATS Briefing in May 2017, continued at the inaugural PALs United for Lung Health event held in DC in October 2017, and was further advanced at the Advocacy Roundtable held at CHEST in Toronto in October 2017. Two-thirds of 2018 Advocacy Roundtable registrants attended one or more of these previous meetings.
October 23, 2017 - PALs United for Lung Health: Collaborating to Raise the Profile of Lung Disease to Create Greater Access to Care, Resources and Better Patient-Centered Solutions - Washington, DC
Invitation-only gathering involving approximately 40 executive level national advocacy leaders in an interactive roundtable setting with national policy leaders, moderated by Susan Dentzer. Objectives:
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Convene and engage national lung health advocates, thought leaders and other key stakeholders to raise and accelerate the dialogue and development of strategies for improving mutually important policy priorities in lung health.
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Identify specific opportunities and mutually agreed upon strategies for enhancing collaboration and mobilization of health advocacy leaders to advance patient-centered solutions relating to access to care, services and innovations in lung health.
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Review the current healthcare landscape as it relates to older adults with chronic diseases and complex healthcare needs to identify areas of mutual interest and the potential for organizing a broad array of health advocacy organizations for collective impact.
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Explore the issues that impact the long-term well-being of older adults with chronic diseases and complex healthcare needs, the healthcare and social service delivery systems and the growing burden of complex health conditions on patients, caregivers and providers.
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Identify opportunities for engagement and collaboration of health advocacy leaders in order to advance the voice of the patient & family in policy that promotes integrated, patient-centered solutions that can improve coverage, promote quality and empower patients, caregivers and advocates in the older adult community.
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